Pennsylvania Coalition for Informed Consent (PCIC) is collecting confidential constituent testimonies about experiences with leucovorin, acetaminophen (Tylenol), and vaccine adverse events. We will compile these stories into a private briefing for Pennsylvania legislators and staff to help them better understand real-world outcomes and the lived impact on families.

Submit to: InformedConsent2015@gmail.com or use this form link.

Privacy: Your story will only be shared with lawmakers and staff.

Why Your Voice Matters

Statistics don’t tell the whole story. Personal experiences—brief, factual, and respectful—help lawmakers see what’s working, what’s not, and where policy can better support families, clinicians, and patients.

1) Lived experience fills evidence gaps.

Clinical trials and administrative data rarely track day-to-day effects, access barriers, or long-term follow-up. First-hand accounts highlight patterns (e.g., timing, dose, response, side effects, recovery) that can guide better questions, better oversight, and better informed consent materials.

2) Stories translate complexity into plain language.

Legislators and staff juggle hundreds of bills. Clear, real-world examples make it easier to understand risks, benefits, and trade-offs—and to spot where current forms, consent processes, or reporting systems confuse or fail families.

3) Policymakers need both outcomes: good and bad.

Constructive testimony isn’t only about injuries or failures. Positive or mixed outcomes show what worked—dosages, supports, or care pathways worth expanding—and where guardrails or training actually made a difference.

The goal is simple: help families and clinicians make informed decisions, improve transparency, and ensure policies support—not override—patient-centered care. Your testimony turns policy from an abstract idea into something legislators can see, understand, and improve.

Who Can Submit

• Parents, caregivers, and adult patients
• Clinicians who wish to share de-identified observations
• Pennsylvanians with first-hand experience (such as daycare workers, teachers or teacher aides)

What to Include

•  Use plain language, 500 words recommended -Respectful Submission Guidelines include: Stick to your direct experience. Avoid attacking language; focus on facts and impacts.
• Who was affected (first name/relationship; age range)
• Timeline of events and key clinical notes (diagnoses, tests)
• Treatments tried & outcomes (e.g., leucovorin dose/response, Tylenol timing/dose, specifics of adverse event care)
• Current status and day-to-day impacts (school, work, finances, supports)
• What you want lawmakers to know (specific policy requests)
• Optional: Attach supporting documents or clinician letters if you wish. Please remove personal identifiers if you prefer anonymity.

How We’ll Use Your Testimony

We will compile testimonies into a confidential briefing packet for legislators and their staff.

Submit Your Testimony via Form or Email

1. Use our secure form.

OR

1. Email: InformedConsent2015@gmail.com
2. Subject line: “Testimony”
3. Attach: Word/Google Doc or paste into the email body

Confidentiality & Disclaimer

PCIC is a nonpartisan advocacy organization focused on informed consent, privacy, and medical choice in Pennsylvania. Information collected is for policymaker education only. We ask that you provide at least your first name and last initial with your city and state. This will allow us to effectively use this information with targeted legislators.

Have Questions? Email InformedConsent2015@gmail.com with the subject “Testimony Question,” and a PCIC volunteer will respond.